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"New Start on Life" for a Thyroid Eye
Clinic Patient at the Shiley Eye Center

Linda Nacif feels she has been given a “new start on life.” At the age of 58, Linda noticed that her eyes appeared to beprotruding from their sockets and were tearing excessively. She was also experiencing weight loss, accelerated heart beat, and insomnia; all symptoms of thyroid overaction. When eye involvement is associated with thyroid imbalance, this is referred to as Thyroid Eye Disease (TED). Linda had an even more uncommon condition associated with TED, Superior Limbic Keratoconjunctivitis (SLK). This typically involves pain, burning, and irritation of the eye resulting in the development of inflammation of the conjunctiva beneath the upper eyelid.

Linda said she had “lost her identity” because she was embarrassed to even look her loved ones in the eye and always wore dark sunglasses in public. Thinking back on her experience, Linda expressed that, “ Having TED and SLK represents more than the loss of vision with diplopia - it is the loss of identity. The eyes are the doorway to the heart and allow expressions of tenderness, love and care for those close to us and mean more than a thousand words. All of a sudden, with TED, we only have one expression – SCARED! We fear we will never be able to reflect normal expressions again.”

Linda was diagnosed with TED and SLK in 2004 by Dr. Renata Ochabski, an alum of the Shiley Eye Center. Dr. Ochabski referred Linda to Shiley's Thyroid Eye Clinic, a unique multi-disciplinary team of three ophthalmologists who combine their specialties to best treat TED patients. Dr. David B. Granet, Director of the Anne and Abraham Ratner Children's Eye Center, treats misalignment and/or enlargement of eye muscles through non-surgical and surgical approaches; Dr. Leah Levi, Chief of Neuro-ophthalmology, addresses the uncommon involvement of the optic nerve in patients with thyroid orbitopathy; and Dr. Don O. Kikkawa, Chief of Ophthalmic Plastic and Reconstructive Surgery, restores the eyes of these patients back to their natural position in the orbit, improving both function and appearance.

"Thanks to my caring and wonderful doctors at Shiley, I am me again!" said Linda.

Linda arrived at Shiley feeling anxious and frightened but after meeting the Thyroid team she became more at ease. She remembers how “down-to-earth” Dr. Granet was, Dr. Levi's empathy, and Dr. Kikkawa's overwhelming assurance; she considered them a perfect team. She appreciated their honesty, understanding, and superior ability to handle her problem.

It took about two years for the Thyroid team to get Linda from diagnosis to recovery. Thanks to Shiley's Thyroid team, Linda regained symmetry in both eyes and felt comfortable in her own skin again. Now she has a new start on life and is able to see things she didn't see before! “Thanks to my caring and wonderful doctors at Shiley, I am me again!” said Linda. Linda wishes to express her gratitude to the doctors at the Shiley Eye Center. In her own words, she states, “Thank you Drs. Levi, Granet, and Kikkawa for always empathizing, for being so professional, and for giving me back myself! And thank you for the joy, satisfaction, and pride upon witnessing the result of Dr. Kikkawa's successful operation. I pray that anyone who suffers from TED and/or SLK gets to have the opportunity to get their lives back as I have!”

 

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